Responsible Genetics: The Moral Responsibility of Geneticists for the Consequences of Human Genetics ResearchSpringer Science & Business Media, 2001 M12 31 - 276 páginas MORAL RESPONSIBILITY AND THE HUMAN GENOME PROJECT The Human Genome Project (HGP) is now almost completed. A draft of the full DNA sequence of the human genome has recently been published (lnt. Hum. Gen. Seq. Cons., 2001; Venter et al., 2001). The project started in 1990 and was planned to be completed fifteen years later. lt is now clearly ahead of schedule. But even when the project is completed much work remains-the analysis of the function of the 30-40,000 genes in the human genome is beyond the scope of the project and willlast for decades. However, even before the HGP started, it was rather controversial from an ethical point of view; not so much because of the sequencing work as such, but because of its anticipated consequences. The results of the project might be used, for example, in developing genetic tests, genetically tailor-made drugs, and gene therapies. Some people fear that genetic testing may lead to discrimination in insurance and at the workplace. Some view the pharmaceutical companies' research on genetically tailor-made drugs as an unacceptable commercialization of science. Some anticipate that the development of gene therapy will give rise to a society in which parents want to design perfect babies with genetic enhancement techniques. |
Contenido
MORAL RESPONSIBILITY AND MORAL IMAGINATION | 1 |
2 ENGINEERING OR TINKERING IN MORAL REASONING? | 15 |
3 IMAGINATIVE CASUISTRY VS OTHER NORMATIVE POSITIONS | 25 |
4 IMAGINATIVE CASUISTRY IN BIOETHICS | 41 |
MORAL RESPONSIBILITY IN SCIENCE | 51 |
2 RESPONSIBILITY OF | 54 |
3 RESPONSIBILITY TO | 64 |
CHOICE OF SUBJECT | 69 |
3 GENE HUNTING IN ETHNIC GROUPS | 136 |
4 GENETIC TESTING AND GENETIC COUNSELING | 146 |
5 GENETIC SCREENING AND PUBLIC HEALTH WORK | 156 |
6 GENETIC INFORMATION IN EMPLOYMENT AND INSURANCE | 160 |
7 GENETICALLY TAILORMADE DRUGS | 165 |
GENETIC MODIFICATION OF HUMANS AND LABORATORY ANIMALS | 171 |
2 GERMLINE GENE THERAPY | 182 |
3 GENETIC ENHANCEMENT | 198 |
RESEARCH AND PUBLICATION | 73 |
APPLICATION | 76 |
GENERAL PROPOSALS | 84 |
THE HUMAN GENOME PROJECT JUSTIFICATION PROMOTION AND ACCESS TO RESULTS | 91 |
2 DIALOGUE AND THE HUMAN GENOME PROJECT | 92 |
3 JUSTIFICATION OF THE HGP | 96 |
4 PROMOTION OF THE HGP | 105 |
OPEN ACCESS OR PRIVATE PATENTS? | 114 |
GENE HUNTING GENETIC TESTING AND GENETICALLY TAILORMADE DRUGS | 127 |
2 GENE HUNTING IN FAMILIES | 130 |
4 ANIMALS USED IN HUMAN GENETICS RESEARCH | 200 |
EUGENICS AND THE LONG TERM GOALS OF REPROGENETIC MEDICINE | 215 |
2 DIALOGUE ON THE LONG TERM GOALS OF REPROGENETIC MEDICINE | 218 |
EUGENICS | 223 |
THREE PROTOTYPICAL VIEWS | 229 |
5 PROPOSALS REGARDING THE LONG TERM GOALS OF REPROGENETIC MEDICINE | 248 |
261 | |
271 | |
Otras ediciones - Ver todas
Responsible Genetics: The Moral Responsibility of Geneticists for the ... A. Nordgren Vista previa limitada - 2013 |
Responsible Genetics: The Moral Responsibility of Geneticists for the ... A. Nordgren Sin vista previa disponible - 2010 |
Responsible Genetics: The Moral Responsibility of Geneticists for the ... A. Nordgren Sin vista previa disponible - 2014 |
Términos y frases comunes
acceptable applications argue aspects basic bioethics causal clinical cognitive semantics consequences context dialogue discussion distinction ethical principles ethical problems ethnic groups eugenics example extent findings focus future gene hunting gene patenting gene therapy research genetic counseling genetic diseases genetic enhancement genetic information genetic testing genetics community genotypic prevention germline gene therapy goals of reprogenetic HGDP human genetics research Human Genome Project human subjects imaginative casuistry implies important informed consent instance integrity interpreted issue justified kind of research long term goals means metaphor moral imagination moral responsibility Moreover nonprototypical normative normative ethical objection ontological reductionism persons perspective pharmacogenomics possible professional policy prospective parents prototype public health question reason regarding reproductive autonomy reprogenetic medicine research ethics responsibility in science responsible geneticists risks scientific community selective abortion sense sequencing serious society somatic gene therapy stresses trying to affect versions virtue ethics
Pasajes populares
Página iv - Another international view of science agrees that it is impossible in the modern world for a man of science to say with any honesty, "My business is to provide knowledge, and what use is made of the knowledge is not my responsibility...